The HIPAA Effect: A Whitepaper Exploring Considerations for Fundraisers | npENGAGE

The HIPAA Effect: A Whitepaper Exploring Considerations for Fundraisers

By on Aug 7, 2008


Guest post by: Garth Moore, Managing Director, Changing Our World

 When the Health Insurance Portability and Accountability Act (HIPAA) became law in 2000, a lot of fundraising professionals in the health services industry began to worry. Would it hinder their ability to get meaningful information from former patients who were prospective donors? How could they address the issue of a disease or treatment with a patient without getting personal and overstepping the law?

Eight years later, a lot of fundraisers within healthcare organizations and medical foundations still ask us about HIPAA because they simply don’t understand the law or how it will affect their fundraising processes. After being asked the same questions over and over again, we realized there was an opportunity to help development officers learn more about HIPAA by putting our thoughts on paper.

Changing Our World has teamed up with Convio on the new study The HIPAA Effect: Considerations for Fundraising After the Health Insurance Portability and Accountability Act. The white paper is a great resource to learn more about HIPAA, how it affects offline and online fundraising data, and how to steer clear of potentially sticky situations.

The HIPAA Effect covers:

•    The history of HIPAA and how it works
•    Information from fundraising professionals on how to work within regulations
•    Best practices for managing donors and online donor databases

It turns out that HIPAA hasn’t really hindered fundraising at all. Actually, it has helped how fundraisers gather information from patients. Most likely, your organization will never run afoul with these regulations. But, if you’ve ever had a question about what your organization can and can’t do under the HIPAA, then this study is the perfect resource. For a full-length version of the white paper, visit or


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